News

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
I was heartbroken when I learned my baby would be born with cystic fibrosis. However, my son's CF care team changed my perspective and connected me with other mothers of children with CF who became ...
Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know — I have experienced it myself and had to accept government assistance to buy food.
One of five children (two full siblings and two half-siblings), Patti was diagnosed with cystic fibrosis at 6 months old. She holds an associate’s degree in business administration. The recipient of ...